Family

Autism Awareness Month: More than a Diagnosis

I am privileged to know so many wonderful parents that have children on the spectrum. I thought it would be interesting to ask parents of kids with autism and people with autism as well, to describe them using one word/phrase. What I got back from everyone was such an amazing array of descriptions 😊 I have listed 75 of the responses below.

  1. Amazing and wonderful
  2. Hilarious
  3. Very emotional 😭 she is so extra
  4. Crazy
  5. Passionate
  6. Caring
  7. Charm
  8. Lovable
  9. Cannot use one word to describe my two x although my no diagnosed husband could be described with the word ****head
  10. One twin is wild and the other is special
  11. Thoughtful
  12. Genius
  13. Sweetest
  14. Crazy, crafty, cheeky, lovely, snuggly, on the go 24/7 if he could
  15. Happy
  16. Intelligent
  17. Content
  18. Kindness
  19. Insightful
  20. Energized
  21. Gorgeous
  22. Explorer
  23. Awesome
  24. Perfection
  25. Unique
  26. Extraordinary
  27. Compassionate and kind
  28. Inspiring and fearless
  29. Creative
  30. Curious
  31. Messy
  32. Exciting
  33. Strong
  34. Outgoing
  35. Brilliant
  36. Worthy
  37. Fun
  38. Loving
  39. Special
  40. Empathetic
  41. Sociable
  42. Talented
  43. Intense
  44. Fascinating
  45. Bubbly
  46. Unstoppable
  47. Quirky
  48. Sunny
  49. Happy feet
  50. Focused
  51. Determined
  52. Handsome
  53. Advocate
  54. Wonderful
  55. Unpredictable
  56. Spirited
  57. Miracle warrior
  58. Giggles
  59. Friendly
  60. Innovative
  61. Encyclopedia
  62. Smart
  63. Truthful
  64. Comedian
  65. Tinker
  66. Strong willed
  67. Stubborn
  68. Exceptional
  1. Brave
  2. Adventurous
  3. Enthusiastic
  4. Quiet
  5. Ray of sunshine
  6. Animal lover
  7. Best friend

All of these responses melted my heart, made me laugh and were so honest. Thank you to all that gave me their response and this shows just how an autism diagnosis isn’t all that defines them. They are so much more and I am so blessed to have the children I have. This is my last post for Autism Awareness Month 💙💙💙

Advertisements
Family

Autism Awareness Month: The Diet Challenges Of Children On The Spectrum

All kids can be picky eaters at one point or another, they want sweets over vegetables or don’t like pasta. On the other hand, parents of children on the spectrum know this is an understatement of their child’s eating habits and face daily challenges just getting their kids to eat.


Causes of Feeding Problems

There is an array of reasons a child on the spectrum won’t eat certain foods or refuses altogether. Some reasons include:

  • Oral Motor Skills – A child may have a jaw weakness that may prevent them from chewing his/her food. It can prevent proper chewing and processing of food.
    Behavioral/Rigidity – Some kids with ASD have a form of OCD and get set in their ways when it comes to what they like to eat. This makes it difficult to introduce new foods or balance their diet.
    Sensory Issues – If this is the case, they may avoid foods based on the smell, color, texture or even temperature.
    Digestive Problems – If something causes stomach aches or acid reflux, a child may avoid it. By going to a gastroenterologist, parents can rule out digestive issues.
    Lack of Self-Awareness – Some kids will over-eat or under-eat. They may eat until they vomit or eat a few things and stop not realizing they are still hungry.

My Own Challenges

I have two children on the spectrum and both have different issues when it comes to eating.

Leo – He is very sensory based and rigid when it comes to his eating. He smells everything he eats, even if it’s something he has had before. He can smell things I can’t even smell and we (our pediatrician and myself) believe he may have a higher sense of smell. For example, we made pancakes the other morning for breakfast and this time we added in a hint of cinnamon. The second we put the pancakes down in front of him, he started crying saying he didn’t like them. We took the plate back and added a plain pancake under the original. He literally took the top pancake off saying he didn’t like it and began eating the plain one. Also, he gets stuck in his way of having the same thing over and over again because it’s “safe,” he knows he likes it.

Lexi – She is behavioral, rigid and lacks some self awareness. We can trick her into eating something as long as she doesn’t know. One example, she will drink the kids Danimals yogurt but won’t eat a regular Yoplait yogurt. However, if I put the regular yogurt in the Danimals container, she will eat it. Just like Leo, she gets stuck in the habit of wanting the same things over and over again. Now with her lack of self awareness, we have to make sure she doesn’t just eat chicken nuggets all day long. She could have that for breakfast, lunch, and dinner – no problems. Obviously that isn’t a great diet, so we have to tell her no and deal with a bit of a crying fit before she will accept something else.

Their diet is limited because of these issues and we try to balance it out as best we can with supplements. But the list of foods they will eat is pretty short for kids their age

Breakfast

  • Eggs
  • Pancakes

Lunch/Dinner

  • Chicken Nuggets (Only Chick-fil-A or Dino Nuggets)
  • Danimals Yogurt
  • Nutella Sandwich (we are working on PBJ)
  • Plain noodles
  • Mac n Cheese

Snacks/Treats

  • Apples, bananas and strawberries (so thankful for this!)
  • Muffins (only chocolate)
  • Cookies (only chocolate or peanut butter)
  • White rice
  • Chips (only plain or cheese)
  • Ice cream (vanilla or chocolate)
  • Cake pops (they each have a specific one)
  • Popcorn
  • Goldfish/Graham Crackers

This is a Complete list of what they will eat!


A Few Helpful Tips

    Keep mealtimes calm and stress-free.
    Set a routine for mealtimes.
    Create a visual plan around mealtime.
    Teach rules about serving sizes.
    Look for signs of food intolerances.
    Look into supplements to fill in the gaps.


Well, I hope y’all enjoying reading through my own experience and tips. If this was new information, then I hope it helps you understand other that deal with this daily.

Thank you so much! Please feel free to post your comments or questions below!

Cloe 💋

Family, Opinion

Autism: Different Therapy Options

April is Autism Awareness Month so I have decided to go into the different therapies that my son receives and just explain the purpose of each.

All of the following are my own personal experiences and understanding of each type of therapy. None of this should be taken for what you will experience. This is for informational purposes only.


ABA (Applied Behavior Analysis)

I feel this one is the most important for kids with autism. It is an in-home therapy that works on behavior, areas of developmental delays and almost any issue that your child is dealing with that is not age appropriate.

Right now, my son receives 10 hours a week of therapy and during those sessions, they work on:

  • Speech
  • Fine Motor Skills (Cutting, coloring)
  • Basic Social Skills (His name and age, turn taking)
  • Self Care (Washing hands, brushing teeth)

Speech

This one is a given since our biggest issue with my son is a speech delay. He has broken sentences and about 50 to 75 words but most people have a hard time understanding him since he has a mild slur as well.

He goes to individual speech twice a week for half and hour each time. Plus, an hour once a week as preschool.

Since he started speech, I’ve notice an improvement in his receptive speech, expressive speech and articulation.


OT (Occupational Therapy)

This one is helpful for some of my sons more mild challenges of sensory issues.

They help him with eating – he is a VERY picky eater and does not like too much variety. When I say this, I’m meaning he I’ll only eat a few things.

  • Chicken nuggets
  • Apple sauce pouches (only in the pouches)
  • Bananas, strawberries, apples
  • Muffins
  • Eggs
  • Nutella Sandwich
  • Chips

That is it. No other foods. So daily, this is all he will eat. He won’t try anything else.

So they help try to expose him to new foods and get him to at least taste the food. He goes to OT once a week for an hour.


Special Autism Preschool (IEP)

This may be my favorite therapy for Leo. He gets to go to a preschool, specific for kids with mild disabilities, for a little over two hours every day during the week.

I enjoy knowing Leo is getting social time with peers, he is out of the house and they work on things to prep him for kindergarten. Plus, they incorporate speech and OT into his learning to help reinforce what he is learning outside of the classroom.

I’ve notice a boost in Leo’s confidence and all other areas since he started preschool. Also, he loves school! He will get sad when I pick him up and is so excited when I drop him off. Knowing he loves school makes it easier to drop him off.


Well, that’s all the therapy Leo gets but I know there are a ton more out there for kids with different issues or more severity. Currently, Lexi is also taking part in all these therapies but for slightly different reasons, she does not have a diagnosis yet.

If you have any questions or would like to share a different therapy you, a family member or friend takes part in, feel free to share in the comments!

Thank you for reading!

Cloe 💋

Opinion

Post-traumatic stress disorder from Combat

I have already posted about my issues with PTSD but from a combat standpoint, I have no experience. Hence I had my husband write his perspective on this topic. So the below post is credited to my guest writer and husband, Aaron McCrea.


This month is PTSD awareness month. What does that mean? And what does that mean to veterans that have PTSD?   My name is Aaron and I was in the Marine Corps from 2007 til 2011. I did 3 deployments one of which was to Afgan in the Hellma province, in the city of Marja. The situation of the city was simply: push back the enemy and win the hearts and minds of the people. My company was tasked with the main road on the south east side of the city. The engagements were mainly kinetic (meaning small arms fire). There were IED’s, however, they were mainly in the main road. The IED’s that were off the road where DFC ( directional fragment charges) and very few pressure plates.


One of my good friend Jason Pacheco happen to step on a pressure plate and lost part of his leg. There was a fire fight every day. It didn’t matter which team was going out, a fight was waiting for you. It was mainly small arms fire with support of snipers. The enemy would set up and wait, as soon as we came in they would hit us, but as we pushed to their positions they would run. They didn’t want to fight toe to toe, at least most of the time, but more of fight and get as much damage as possible until we hit a line of advancement that they could no longer keep fighting with risk to their lives. I cannot remember all the fire fights I was in, but I do remember specific ones, around 15. Since this glorious time in my Marine Corps career I have been dealing with the after math.

76780_116368995094208_6462830_n
I have been out now for 5 years. In that time I have dealt with many things. There seems to be some basic problems that most Marines have to deal with when they get out. This is going to be my personal opinion and depending on the mental strength of an individual will depend on how things affect them. Example: In a fire fight you can have multiple different accounts of the event even if they were all in the same fire team. Why is that? I believe it has to do with their mental stability. To some a fire fight is why they joined and to others the most terrifying experience of their life. Just based off that statement you are going to have two different accounts of what really happened.


There are some key points that I would like to point out that the average person may not be aware off. Life in combat is simple. Yes, that’s right it is simple. There is no distractions of the world such as tv, computers, and money. Your main purpose is to do a job that’s it. My job, push the enemy back and win hearts and minds of the people. What that really entails is simple, conduct combat patrols, rotate 24 security for our protection, keep weapons and equipment operational, eat and sleep. That is simple, I didn’t say easy. Strangle enough, living that way felt more real and normal than living in the states. Let me now transition into how combat veteran’s have issues back home.

“PTSD,” post traumatic stress disorder. This is a term that is now over used and is misunderstood. PTSD is different for different events. Meaning, a person in a car accident is going to have different PTSD than a combat veteran. They both fall under the umbrella of it but not the same and not dealt with the same. Even the name is vague, “post traumatic stress disorder.” Let’s look at the first part, post traumatic. All that tells you is that it is after a traumatic event. That could mean anything, and that means what ever is traumatic for that person. For most people a small accident could be traumatic, which in turn they could have PTSD. The second part, “stress disorder.” Anyone that has anxiety knows exactly what that means and feels like. Situations cause uncontrollably stress resulting in extreme reactions and high emotions with a lack of clear thinking and good judgement. Coming to the conclusion that anyone and everyone can and may have PTSD. I didn’t mention different severities for a reason and I will get to that. Now having more knowledge into the term and the issue lets get into how this affects combat vets.

The word normal comes to mind when I think of combat vets. If anyone knows a combat vet then they know they are anything but normal, however, I believe this to be true. If you look at most of the world the United States are not the same. Our life in the States is quite different. When I was in Afgan it felt normal. That is odd but if you look back at history that was the norm. Look back 100 years and the States were quite different. I guess what I am trying to convey is that in war it is hard to explain to anyone that has not been there and when a person goes from one extreme to another, being the states, it creates problems. Ask the question of why are our vets coming back with issues and not just some of them but most to all of them? There is a real reason and I believe it has to do with our culture. We are more concerned about what actors and actresses are doing when they do nothing to be idolize for. They are not leaders like the ones I know who have been in countless battles and still lead to the best of their abilities and trice for greatness and for what less than 60k a year. Because they believe in what they are doing. They are protecting this country so our people can care about the dumbest things and not know what the world is really like. The good and bad thing about this 10 plus year war is that it is not on our soil. Yes, we have had some attacks but have not had war on our soil. I am not counting 9/11. I am referring to everything since. Life is not simple in the States, most people are so stressed and in debt, our priorities are backwards, what we think is important, mainly famous people, doesn’t mean anything. People in different country’s have conflict yearly and are used to the violence. However, a country that was built on war and violence is now scared of it and doesn’t understand what war really is and what it really means to be an American. This country was build on blood and war and fighting was understood, not always the answer, but knew it was necessary at times and we stood together as one.


Now, coming back from a war that is not understood or accepted leaves vets isolated. My issue with going back to the work force was I expected the same from normal people as I did my Marines and most people don’t understand what we did or why. Only a few know what struggles we have been through. One big issue is relating, the only people I can really relate to now are either combat vets or convicts. Why, because they are like vets, have been through what you can’t explain and know that the world is not what it seems. I live my life knowing at any point there can be an attack.  I’ve gone a little off topic, let’s get back to the issue at hand.

My struggles since I have transitioned from the Marines to normal life. Well, it doesn’t hit you at first, the first 6 months was a piece of cake. But about that 6 month I went through some interesting changes. Before that however let me tell you that I went right out of the corps and into college. I struggled with the other students who where around 18 to 20 and I was 22. They had little to no life experience and strong opinions on matters they knew nothing about. Strange. There seemed to be a lack of being personal and real, well at least that’s how I felt. So I didn’t get along with most of the other students. Add in that I had developed a fear of crowds. Why? Because bad things happen in crowds and it is unsafe, too many people to watch and too many unknowns. Then came some good old PTSD. I started becoming really angry then super emotional. I had to hide out for a couple weeks because I couldn’t explain or control what I was going through. After that subsided I would have triggers that would set me off in either anger or any other state of high emotion. But 90% of the time was complete numbness. Didn’t feel for anyone or anything. Let me say that my combat was not as bad as others. I count my experience nothing compared to other vets who have really been through it to which only a few came home. With that comes more severity which breeds more extreme behavior.

There is a difference between what you can control and what you cannot. I am a person who strives to do better and because of that I saw I had some issues, after my wife had pointed out many of times, however, I didn’t really know there was issues until I had made a family. I noticed my anger was out of control and I had no patience with my son. I strived to get it under control but there was this confusing that I cannot explain that I kept running into. I could only get so far until I hit a wall of confusion that I could not mentally get passed and it did not allow me to move forward in anything. I had to drop out of school and start working, and when dealing with my son I could only do so much before I would have to leave as to not create anxiety in him. Finally I broke, I was only able to get 2 hours of sleep, I was extremely angry to the point that if someone would said anything and I didn’t like it I was going to blow up, so I went to work. Once I got to work I knew I needed to leave. I went into my bosses office and told him that I was unstable and had to leave from there I went straight to a vet center, which is a veteran run counseling office. I asked to speak with someone and I was lucky to get a counselor who helped me get past my wall of confusion. I have made great strides ever since. Now my anger is under control and my mind is clear to think effectively.

It took me about 3 to 4 years to get to were I am and like I stated before my combat is not as bad as others. In our brains we have something called a sympathetic nerves system or, fight or flight. What it does is it is the controller for your adrenaline. Now, what most people don’t know is when your body is being pumped with adrenaline it provides oxygen to your muscles but starved your brain. Combat vets sympathetic nerves systems are now broken. Anything can set it off, which leads to the wall of confusion and unable to think clearly. This same issue has to do with many people that have PTSD. I have a number of issues ranging from screaming in my sleep, social anxiety, easily startled, to hyper vigilance. I was lucky enough to be able to see the issue and work on it, others have a much worse plate than I and are unable to deal with it on their own without medication and therapy. But at the end of the day if the individual is not mentally wanting to get better they will not or if they do not believe there is an issue. All veterans have adopted the term PTSD from our society but that is the truth. There are a number of issues that come into play that are over looked, one of which is how the VA handles this; pumping vets full of drugs and not working on their mental stability. For some it is a chemical imbalance of the brain and other it is actually TBI, traumatic brain injury, not PTSD because they have similar symptoms.


In concluding, being aware that PTSD is not a disorder per-say, but a different state of mind that was developed by living in a different world. A world that has death and violence constantly unlike that of the states. I am speak of the majority not the minority of the country, like I stated convicts and gang members are similar because they also do not live in the same world as the rest of the states, a sub-society. Going from one extreme to another is alway going to come with conflict. I hope this help some better understand PTSD and if you know someone that has it ask them about it, I am sure they will be willing to share. Just don’t ask if they have shot anyone, no one likes to answer that question.

Advice/Tips, Opinion, Relationships

Post-traumatic stress disorder from Abuse

In honor of PTSD (Post-traumatic stress disorder) Awareness Month, I am writing from my own personal experience of abuse and the affects. This post does contain graphic content that may disturb readers. 


I was in a relationship in 2007 that, at the time, was an abusive relationship but I was not aware of it. He was abusive in multiple ways and I was so young that I didn’t see it as abuse.

He was emotionally/verbally abusive by isolating me from friends and family, blaming me, accusing me, threatening me and/or himself. 

I was financially abused by him controlling my money and when I could use it. 

He used social media and texting to cause digital abuse. He would degrade or threaten me and harass me when I wasn’t with him. Demanded access to all my social media and would go through my phone. 

He stalked me at work, and any time I would be without him, he had a friend watch me. 


When I finally got the courage to leave him, I knew it could go bad and warned coworkers. Once I got home and told him I didn’t want to be with him anymore, I saw the anger rise. This was the first time I had ever been physically abused in my life. He pinned me to the ground and I tried to deflect his punches but many made it past my arms. He knocked me out and he waited til I became conscious to tell me it’s my fault for him doing this. He asked if I was still going to leave and I said yes, the beating continued for about another 10 minutes with him screaming at me. He would yell things like “why would you leave me when I love you?”, “nobody will love you after me because you’re damaged”, “I’ll kill you before I see you with someone else”, and “you are making me do this.”

Coming up with a plan, I finally said I wouldn’t leave, knowing he had work that night. He left and said we would talk later. Once I saw him drive away I called a coworker who picked me up and all my belongings and took me to their home to stay. 

We filed a police report, took photos and visited a doctor. 

The results:

He never was caught. Found out he was an illegal and was hiding. 

I ended up with bruises covering my entire body, busted lip, bone bruises along my jaw, swollen esophagus, a fractured supraorbital arch (eyebrow bone), and PTSD. 


I’m not going to go into detail of my symptoms but I have complied a list of PTSD symptoms I developed. 

  1. Flashbacks and nightmares
  2. Insomnia 
  3. Anxiety 
  4. Numb to emotions 
  5. No self esteem 
  6. Constant headaches
  7. Negative self image 
  8. Hypervigilance


Today, I have moved so far from the struggles I faced then and have become a stronger person. 

What I struggle with today include momentary anxiety and moments of low self esteem. 

I am happy with the person I have become and took a negative and turned it into a positive. I rarely ever have this experience come up and have moved past it. It take determination and courage to push through. Putting my faith in the Lord is what really got me out of such a dark place. My husband and kids really have brought that chapter to a close and I am so thankful I get to enjoy every day with them!

Feel free to share your thoughts or share your story by commenting below. If you would like to share privately, my email is cloe.pottorff@gmail.com 😊💜