Family

Autism Awareness Month: More than a Diagnosis

I am privileged to know so many wonderful parents that have children on the spectrum. I thought it would be interesting to ask parents of kids with autism and people with autism as well, to describe them using one word/phrase. What I got back from everyone was such an amazing array of descriptions 😊 I have listed 75 of the responses below.

  1. Amazing and wonderful
  2. Hilarious
  3. Very emotional 😭 she is so extra
  4. Crazy
  5. Passionate
  6. Caring
  7. Charm
  8. Lovable
  9. Cannot use one word to describe my two x although my no diagnosed husband could be described with the word ****head
  10. One twin is wild and the other is special
  11. Thoughtful
  12. Genius
  13. Sweetest
  14. Crazy, crafty, cheeky, lovely, snuggly, on the go 24/7 if he could
  15. Happy
  16. Intelligent
  17. Content
  18. Kindness
  19. Insightful
  20. Energized
  21. Gorgeous
  22. Explorer
  23. Awesome
  24. Perfection
  25. Unique
  26. Extraordinary
  27. Compassionate and kind
  28. Inspiring and fearless
  29. Creative
  30. Curious
  31. Messy
  32. Exciting
  33. Strong
  34. Outgoing
  35. Brilliant
  36. Worthy
  37. Fun
  38. Loving
  39. Special
  40. Empathetic
  41. Sociable
  42. Talented
  43. Intense
  44. Fascinating
  45. Bubbly
  46. Unstoppable
  47. Quirky
  48. Sunny
  49. Happy feet
  50. Focused
  51. Determined
  52. Handsome
  53. Advocate
  54. Wonderful
  55. Unpredictable
  56. Spirited
  57. Miracle warrior
  58. Giggles
  59. Friendly
  60. Innovative
  61. Encyclopedia
  62. Smart
  63. Truthful
  64. Comedian
  65. Tinker
  66. Strong willed
  67. Stubborn
  68. Exceptional
  1. Brave
  2. Adventurous
  3. Enthusiastic
  4. Quiet
  5. Ray of sunshine
  6. Animal lover
  7. Best friend

All of these responses melted my heart, made me laugh and were so honest. Thank you to all that gave me their response and this shows just how an autism diagnosis isn’t all that defines them. They are so much more and I am so blessed to have the children I have. This is my last post for Autism Awareness Month πŸ’™πŸ’™πŸ’™

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Advice/Tips, Family

Mama Motivation

Life as a parent comes with joy, humor, excitement and love; but it also comes with frustration, exhaustion, stress and sadness.

In those low moments as a parent, finding a silver lining can make a world of difference to your outlook on life and family.

Being a mom of three is crazy; being a mom of three and two have special needs – insane! However, I always find a positive outlook to all the negative that comes with disabilities.

Just this past week, I had an early IEP (Individualized Education Program), scheduled a 3 day EEG and scheduled an audiology appointment (daughter might need a hearing aid). To top it all off, I took my daughter to the ER for a severely infected ingrown toenail, which they had to scalpel open. This is not including our regular schedule of therapy and preschool.

When I tell anyone about all this craziness, they always have some of the same questions for me. How do you do it all? Doesn’t this stress you out? Don’t you get worn out? Honestly, motivation is all that keeps me going.

My motivation is my children. I have to push past my stress of all I need to do, push past my sadness for what my children are going to have to endure; and give them reassurance that everything is under control and they will be okay with anything that comes our way. I show them that just because something bad happens, it doesn’t mean I give up or break down. That doesn’t mean I don’t take small moments to deal with my emotions but I get my feelings out and then get back to work.

The silver linings I found in the possibility that my daughter might be partially deaf in one ear – she can still hear with her right ear and once we get a hearing aid for her, her speech with improve as well!

The silver lining in going to the ER today – I was forced to make all my calls and schedule appointments since there was nothing else to do. Plus, some focused time on how my daughter felt while my son spent some quality time with grandma.

In all that happens in our life, we can learn from the struggles and help others in the same situation. Be thankful for what you have and realize that there is so much more to be thankful for than we give credit.

Hope this gave you a more positive outlook and some ideas for your own motivation in life!

Family, Opinion

Autism: Different Therapy Options

April is Autism Awareness Month so I have decided to go into the different therapies that my son receives and just explain the purpose of each.

All of the following are my own personal experiences and understanding of each type of therapy. None of this should be taken for what you will experience. This is for informational purposes only.


ABA (Applied Behavior Analysis)

I feel this one is the most important for kids with autism. It is an in-home therapy that works on behavior, areas of developmental delays and almost any issue that your child is dealing with that is not age appropriate.

Right now, my son receives 10 hours a week of therapy and during those sessions, they work on:

  • Speech
  • Fine Motor Skills (Cutting, coloring)
  • Basic Social Skills (His name and age, turn taking)
  • Self Care (Washing hands, brushing teeth)

Speech

This one is a given since our biggest issue with my son is a speech delay. He has broken sentences and about 50 to 75 words but most people have a hard time understanding him since he has a mild slur as well.

He goes to individual speech twice a week for half and hour each time. Plus, an hour once a week as preschool.

Since he started speech, I’ve notice an improvement in his receptive speech, expressive speech and articulation.


OT (Occupational Therapy)

This one is helpful for some of my sons more mild challenges of sensory issues.

They help him with eating – he is a VERY picky eater and does not like too much variety. When I say this, I’m meaning he I’ll only eat a few things.

  • Chicken nuggets
  • Apple sauce pouches (only in the pouches)
  • Bananas, strawberries, apples
  • Muffins
  • Eggs
  • Nutella Sandwich
  • Chips

That is it. No other foods. So daily, this is all he will eat. He won’t try anything else.

So they help try to expose him to new foods and get him to at least taste the food. He goes to OT once a week for an hour.


Special Autism Preschool (IEP)

This may be my favorite therapy for Leo. He gets to go to a preschool, specific for kids with mild disabilities, for a little over two hours every day during the week.

I enjoy knowing Leo is getting social time with peers, he is out of the house and they work on things to prep him for kindergarten. Plus, they incorporate speech and OT into his learning to help reinforce what he is learning outside of the classroom.

I’ve notice a boost in Leo’s confidence and all other areas since he started preschool. Also, he loves school! He will get sad when I pick him up and is so excited when I drop him off. Knowing he loves school makes it easier to drop him off.


Well, that’s all the therapy Leo gets but I know there are a ton more out there for kids with different issues or more severity. Currently, Lexi is also taking part in all these therapies but for slightly different reasons, she does not have a diagnosis yet.

If you have any questions or would like to share a different therapy you, a family member or friend takes part in, feel free to share in the comments!

Thank you for reading!

Cloe πŸ’‹

Family

Autism: First Day of Preschool

My son, Leo, started preschool on Wednesday and I was nervous because he has had a hard time with other school like classes. He hates going to speech and cries when therapists show up at the home for ABA. So I was nervous for how he would be with school. 


He was excited to get his backpack on and there was no complaints walking to his class. We had met his teacher prior to Leo’s first day so when he saw her, he ran right up to her and held her hand. 

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Without any given directions he followed her to the door of his class and saw everyone else hanging their backpacks up on the hooks and he did the same. Turned and waved at me and walked into class. 

It melted my heart! I was so proud of his independence and confidence but sad that it was that easy for him to say bye to me! Haha a silly thing but only a parent would understand. 

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It was a strange feeling being without him for a little over two hours but also a little freeing. When it was time to pick Leo up, I was so excited expecting him to ​​be happy to see me. However, I got the opposite response. He held his teachers leg saying “school, school,” and motioning for me to leave. 

Finally got him to leave but he was crying and pointing back at his class. I guess I can be thankful that he really loves school and his teacher. 

Crying because he saw the car and didn’t want to leave school

If you have any funny first day of school stories, please feel free to share them in the comments below. Or if you have any comments or questions, go ahead and comment below. Thank you!

Advice/Tips, Family

Autism: IEP Process

I’ve decided to share some IEP experience tips and give other parents an insight to what they should expect. 

  • First, be prepared to have many, many meetings so they can evaluate your child. We, personally, had 7 meetings before the final meeting.
  • Second, always remember that you are your child’s best and only advocate. Fight for what you feel your child deserves and needs.
  • Third, have support during this process. This could be your spouse, family member or friend. Makes decisions easier and takes the stress of pressure off of you. 
  • Finally, Don’t feel obligated to sign when presented with their IEP recommendation. You can take it home to “think” about it. I took it home and asked my sons pediatrician and other therapists what they thought and they all thought he should have more time. 

I just recently received the decision of what the school district is offering for my son. They are giving him 1 hr a week of group speech and that is it! I requested to take the IEP home and decide what I think. 

I am going to come back at them with the request for at least 2 hrs a week of individual speech and at least 1 hr a week of OT. 

Once they review my request, they will schedule another meeting and I will find out if they will be adding my request or if they don’t feel he needs the extra time. 

*I will post an update once we get the final decision.*


Please feel free to share some of your experiences or any comment or questions you have! 😁