Mama Motivation

Life as a parent comes with joy, humor, excitement and love; but it also comes with frustration, exhaustion, stress and sadness.

In those low moments as a parent, finding a silver lining can make a world of difference to your outlook on life and family.

Being a mom of three is crazy; being a mom of three and two have special needs – insane! However, I always find a positive outlook to all the negative that comes with disabilities.

Just this past week, I had an early IEP (Individualized Education Program), scheduled a 3 day EEG and scheduled an audiology appointment (daughter might need a hearing aid). To top it all off, I took my daughter to the ER for a severely infected ingrown toenail, which they had to scalpel open. This is not including our regular schedule of therapy and preschool.

When I tell anyone about all this craziness, they always have some of the same questions for me. How do you do it all? Doesn’t this stress you out? Don’t you get worn out? Honestly, motivation is all that keeps me going.

My motivation is my children. I have to push past my stress of all I need to do, push past my sadness for what my children are going to have to endure; and give them reassurance that everything is under control and they will be okay with anything that comes our way. I show them that just because something bad happens, it doesn’t mean I give up or break down. That doesn’t mean I don’t take small moments to deal with my emotions but I get my feelings out and then get back to work.

The silver linings I found in the possibility that my daughter might be partially deaf in one ear – she can still hear with her right ear and once we get a hearing aid for her, her speech with improve as well!

The silver lining in going to the ER today – I was forced to make all my calls and schedule appointments since there was nothing else to do. Plus, some focused time on how my daughter felt while my son spent some quality time with grandma.

In all that happens in our life, we can learn from the struggles and help others in the same situation. Be thankful for what you have and realize that there is so much more to be thankful for than we give credit.

Hope this gave you a more positive outlook and some ideas for your own motivation in life!

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Autism: Different Therapy Options

April is Autism Awareness Month so I have decided to go into the different therapies that my son receives and just explain the purpose of each.

All of the following are my own personal experiences and understanding of each type of therapy. None of this should be taken for what you will experience. This is for informational purposes only.


ABA (Applied Behavior Analysis)

I feel this one is the most important for kids with autism. It is an in-home therapy that works on behavior, areas of developmental delays and almost any issue that your child is dealing with that is not age appropriate.

Right now, my son receives 10 hours a week of therapy and during those sessions, they work on:

  • Speech
  • Fine Motor Skills (Cutting, coloring)
  • Basic Social Skills (His name and age, turn taking)
  • Self Care (Washing hands, brushing teeth)

Speech

This one is a given since our biggest issue with my son is a speech delay. He has broken sentences and about 50 to 75 words but most people have a hard time understanding him since he has a mild slur as well.

He goes to individual speech twice a week for half and hour each time. Plus, an hour once a week as preschool.

Since he started speech, I’ve notice an improvement in his receptive speech, expressive speech and articulation.


OT (Occupational Therapy)

This one is helpful for some of my sons more mild challenges of sensory issues.

They help him with eating – he is a VERY picky eater and does not like too much variety. When I say this, I’m meaning he I’ll only eat a few things.

  • Chicken nuggets
  • Apple sauce pouches (only in the pouches)
  • Bananas, strawberries, apples
  • Muffins
  • Eggs
  • Nutella Sandwich
  • Chips

That is it. No other foods. So daily, this is all he will eat. He won’t try anything else.

So they help try to expose him to new foods and get him to at least taste the food. He goes to OT once a week for an hour.


Special Autism Preschool (IEP)

This may be my favorite therapy for Leo. He gets to go to a preschool, specific for kids with mild disabilities, for a little over two hours every day during the week.

I enjoy knowing Leo is getting social time with peers, he is out of the house and they work on things to prep him for kindergarten. Plus, they incorporate speech and OT into his learning to help reinforce what he is learning outside of the classroom.

I’ve notice a boost in Leo’s confidence and all other areas since he started preschool. Also, he loves school! He will get sad when I pick him up and is so excited when I drop him off. Knowing he loves school makes it easier to drop him off.


Well, that’s all the therapy Leo gets but I know there are a ton more out there for kids with different issues or more severity. Currently, Lexi is also taking part in all these therapies but for slightly different reasons, she does not have a diagnosis yet.

If you have any questions or would like to share a different therapy you, a family member or friend takes part in, feel free to share in the comments!

Thank you for reading!

Cloe πŸ’‹

Autism Awareness Month Q&A

So I’m just going to post a few questions I received and my answers. All answers are my opinion or point of view, not all my experiences will be the same for someone else dealing with autism. No two people with autism have the same symptoms or issues. 

Q: What did you think when you found out he had autism?

A: Surprisingly, I was more relieved than anything because now had a plan of how to deal with whatever was thrown my way. If you are wanting more of my diagnosis experience, check out my past blog post on it. 


Q: How has that changed your life?

A: It hasn’t changed that much. He goes to preschool like other kids but it’s a mild special needs class that works on speech. My life with autism isn’t that much different besides making sure he gets therapy to help in the areas he has delays. 

​​
Q: Is there anything he isn’t able to do since he’s autistic?

A: Not really. The only thing I can think of is maybe some independent things since he can’t talk too much yet and isn’t potty trained yet. 

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Q: Is he on a special diet?

A: Yes, but very mild restrictions. He can’t have dairy but that is it. I substitute milk with coconut milk and chocolate with carob chips. Cheese is the only hard one since there are substitutes but he doesn’t like the taste. 


Q: How did you know he was autistic?

A: When he was about 1 years old, he was very antisocial, didn’t babble or make eye contact, didn’t play with toys but was fascinated by wheels and light up toys. He didn’t respond to his name or understand simple instructions. Had issues with textures and restrictive clothing. They just seemed odd and I asked to make sure he was ok. Nothing wrong with those behaviors unless they would interfere with his future life. Started therapy and saw major improvements. 


Hope this was informational and thank you all for the questions. Let me know what you thing in the comments!

Happy Easter!! πŸ£πŸ‡πŸ° 
Love, Cloe πŸ’‹

Autism: IEP Process

I’ve decided to share some IEP experience tips and give other parents an insight to what they should expect. 

  • First, be prepared to have many, many meetings so they can evaluate your child. We, personally, had 7 meetings before the final meeting.
  • Second, always remember that you are your child’s best and only advocate. Fight for what you feel your child deserves and needs.
  • Third, have support during this process. This could be your spouse, family member or friend. Makes decisions easier and takes the stress of pressure off of you. 
  • Finally, Don’t feel obligated to sign when presented with their IEP recommendation. You can take it home to “think” about it. I took it home and asked my sons pediatrician and other therapists what they thought and they all thought he should have more time. 

I just recently received the decision of what the school district is offering for my son. They are giving him 1 hr a week of group speech and that is it! I requested to take the IEP home and decide what I think. 

I am going to come back at them with the request for at least 2 hrs a week of individual speech and at least 1 hr a week of OT. 

Once they review my request, they will schedule another meeting and I will find out if they will be adding my request or if they don’t feel he needs the extra time. 

*I will post an update once we get the final decision.*


Please feel free to share some of your experiences or any comment or questions you have! 😁